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Brain Cancer
-
Beyond the Road's End...
- Brain tumor electronic book, true story
of a couple's journey through glioblastoma diagnosis, treatments, support, death and
dying....
42 pages found, 2 links found, 321 score http://www.beyondbook.com
- Brain
Tumor Society: Resources for patients, families, and professionals...
- The Brain Tumor Society provides
resources for patients, survivors, family, friends and professionals. Site Map
About TBTS Basic Information About Brain Tumors Patient Family
Resources Newsletter...
135 pages found, 137 links found, 125 score http://www.tbts.org
- NBTF - Giving Help Giving Hope...
- Copyright 2000 National Brain Tumor
Foundation | Disclaimer ...
79 pages found, 54 links found, 115 score http://www.braintumor.org
Organisations
- American Brain Tumour Association
(USA) A non-profit organization founded in 1973 dedicated to the elimination of brain
tumors through research and patient education services.
- Brain Tumor Foundation of Canada
- Brain Tumor Society (USA)
Resources for both patients, relatives, and health professionals
- Give Hope (UK) a national
brain tumour organization aiming to provide support and promote awareness and research.
The site includes a newsletter, list of events, list of UK addresses, links, and other
information.
- National Brain Tumor Foundation
(USA) a non-profit organization dedicated to raising funds for research and to providing
support to patients and their families. The web site includes information about tumor
types, treatments, clinical trials, FAQ, news, physician's resources etc.
- Tillison Research
Center (Indiana, USA) A non-profit
organization funded by donations. The center
provides customized information on brain tumors and research, support for transportation,
and other services. Extensive links to other brain tumor resources.
Childhood
Brain Tumours
- Patient's
info. for Childhood Supratentorial Primitive Neuroectodermal and Pineal Tumours
(CancerNet) Information about the disease, staging, and treatment overviews. It is
reviewed each month by a panel of medical experts.
- Patient's
information for Childhood Brain Stem Glioma (CancerNet) Information about the disease,
staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Patient's
information for Childhood Brain Tumours (CancerNet) Information about the disease,
staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Patient's
information for Childhood Cerebellar Astrocytoma (CancerNet) Information about the
disease, staging, and treatment overviews. It is reviewed each month by a panel of medical
experts.
- Patient's
information for Childhood Cerebral Astrocytoma (CancerNet) Information about the
disease, staging, and treatment overviews. It is reviewed each month by a panel of medical
experts.
- Patient's
information for Childhood Medulloblastoma (CancerNet) Information about the disease,
staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Patient's
information for Childhood Visual Pathway Glioma (CancerNet) Information about the
disease, staging, and treatment overviews. It is reviewed each month by a panel of medical
experts.
- A
Starting Point - to Connect with Resources Related to Pediatric Neuro-oncology
(University of Miami Medical School, USA) This site provides links to resources about
children's brain tumors listed by category (tumor types, treatments,
organizations,
list servers, research, etc), medical terms etc.
- Angel Wings -
A Memorial to Michael A site about Michael who was sadly lost after developing a brain
tumour. The site includes Michael's story, poems by mother; Martha, and links.
- Ashley's Story: Cancer,
Courage, Hope ...Victory ! Most of Ashley's brain tumor (medulloblastoma) was removed
by surgery in early 1997, these pages by her father include information and pictures with
a detailed diary of her treatment with chemotherapy and radiotherapy.
- Brain
Tumor Research - Pediatric Oncology Branch - National Cancer Institute (USA) a brief
summary of children's brain tumour research at NCI.
- Brain Tumor
Survivor Stories: James M (UK) James, from Manchester, was diagnosed with
medulloblastoma in November 1997 at 5 yrs of age. This is his inspiring story hosted on
the "Clinical Trials and Noteworthy Treatments for Brain Tumors" web site.
- Brianna's Home Page - diagnosed
with a PNET Brain Tumor in 1996, age 6 diary updates, information, pictures and links
- CHILD-NEURO-PARENT
E-mail discussion list (University of Wisconsin, USA) a list for parents of Children
with neurological problems to share their concerns, questions, sources of information,
experiences, and helpful tips regarding issues in Child Neurology (including brain
tumors).
- Childhood Brain
Tumours (American Brain Tumor Association)
- Childhood
Brain Tumours (UK) a fact-sheet produced by the United Kingdom Children's Cancer Study
Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's
Cancers".
- Childhood
Central Nervous System Tumours (Health Canada) in the booklet "This Battle Which
I Must Fight"
- Children's Brain Tumor
Foundation (USA) The CBTF is a non-profit organization founded by
families, friends and physicians of children with brain tumors; the
foundation raises funds for research. This site includes details of
services and events, and articles about brain tumors
- General
information for astrocytoma (St Jude's Children's Research Hospital)
- General
information for empendymoma (St Jude's Children's Research Hospital)
- General
information for Germ Cell Tumours of the brain (St Jude's Children's Research
Hospital)
- General
information for Glioma (St Jude's Children's Research Hospital)
- General
information for medulloblastoma (St Jude's Children's Research Hospital)
- Hannah's Hugs
(Illinois, USA) a program to help parents of children with brain tumors, including
practical support for parents during hospital stays. The site includes information about
the program, services, volunteers, donations and links.
- Johns Hopkins Pediatric
Neuro-oncology Team
- Katie Trust, The (UK) The
Katie Trust is a registered charity, formed in 1999, in memory of Katie Neal who had
medulloblastoma. It funds research into childhood brain tumors and provides emotional
support to children and their families, in the North of England.
- Kelly's Page -
diagnosed with medulloblastoma in 1997, age 12 yrs Pictures and treatment updates.
- Kieran's Web
Page - diagnosed with astrocytoma in August 1999, age 3. (Glasgow, UK) This page has
details of Kieran and his diagnosis and treatment with surgery and chemotherapy for a low
grade astrocytoma. There is an update of Kieran's treatment, guest book, summary of
medical information and links.
- Kyle's
Story - Kyle was diagnosed with medulloblastoma in 1995 his story!
- Medulloblastoma
(BACUP, UK) Fact-sheet
- Medulloblastoma
/ PNET Email Discussion List an Email discussion / support list for medulloblastoma
and PNET's set up by parents in the UK.
- Neuroscience
for Kids a site for students and teachers who would like to learn more about the
nervous system. Includes activities and experiments to learn about the brain and spinal
cord. Maintained by Eric Chudler, suported by The National Center of Research Resources.
- Paediatric
Brainstem Tumours (Royal Marsden Hospital, UK) An on-line booklet.
- Pediatric
(Developmental) Neurosurgery Unit (Massachusetts General Hospital / Harvard Medical
school, USA)
- Pediatric Brain Tumor
Patient Resource Handbook (Brain Tumour Foundation of Canada - via OncoLink)
- Pediatric
Oncology Resource Center: Brain Tumors (USA) This page contains information and links
on various aspects of childhood brain tumors. It is part of the Pediatric Oncology
Resource Center, a site produced by parents of children with cancer, hosted by Association
of Cancer Online Resources.
- Ride 4 Kids - Pediatric Brain
Tumor Foundation (USA) Ride for Kids is a not-for-profit
organization which provides
funds for research into childhood brain tumors by the Pediatric Brain Tumor Foundation.
This site includes a Mission Statement, Event schedule, and a Newsletter.
- Rory David Deutsch Foundation
(USA) Founded in memory of a 7 year old who died from a brain stem glioma the Rory David
Deutsch Foundation is dedicated to raising money for medical research on brain tumors in
children.
- Stories and
Faces: Brain Cancer (Pediatric Oncology Resource Center) List of home pages of
children affected by brain tumors.
- The Talking
Lady Presents: Having A Brain Tumor Commercial. Information about a child friendly
book for families where either parent or child has been diagnosed with a brain tumor.
- Tillison
Research Center - Paediatric Section (Indiana, USA) A brain tumor information and
support center. With programs for the patient as well as there families.
Adult /
General Resources
- Patient's
information for Adult Brain Tumours (CancerNet) Information about the disease,
staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- What You
Need to Know About Brain Tumours- Patient's booklet (National Cancer Institute, USA)
This site contains information about the disease, diagnosis, staging, and treatment
options.
- A
Primer of Brain Tumors (American Brain Tumor Association) A Patient's Reference Manual
- Adult
Brain and Spinal Cord Cancer Information (American Cancer Society) an online booklet
including details about diagnosis, staging, treatment etc.
- Al Musella's List of Clinical
Trials and Noteworthy Treatments for Brain Tumors This site includes a searchable
database of over 200 trials and treatments for brain tumors including new and experimental
treatments. There is also a Brain Tumor Forum, a Journal Club, web links, newsletter,
survivors stories and memorials.
- Astrocytoma
(BACUP, UK) Fact-sheet
- Beyond the Road's End A book
by the wife of a cancer patient: telling the story of her husband's 5 month battle with a
brain tumour, including treatments, support, links, death and dying, and other issues. The
book can be viewed online or downloaded free (PDF)
- Biopsy versus
resection for malignant glioma (Cochrane Collaboration) Abstract of a systematic
review.
- Brain
Tumor Therapy (Massachusetts General Hospital, USA)
- Brain
Tumours - overview (MedicineNet)
- Dictionary
for Brain Tumor Patients (American Brain Tumor Association)
- Emma Koenkev's
home page A brain tumor patient
- Ependymoma
(BACUP, UK) Fact-sheet
- Haemangioblastoma
(BACUP, UK) Fact-sheet
- Hydrocephalus
Association
- Massachusetts
General Hospital (Neuro-Oncology Resources)
- Meningioma
(BACUP, UK) Fact-sheet
- Mixed
Glioma (BACUP, UK) Fact-sheet
- Oligodendroglioma
(BACUP, UK) Fact-sheet
- Understanding
Brain Tumours (BACUP, UK) An on-line booklet
- Whole Brain
Atlas (Harvard University)
Centres /
Units
Acoustic
Neuroma
Acoustic neuroma (also sometimes called a neurinoma
or schwannoma) is a benign (non-cancerous) tissue growth that arises on the eighth cranial
nerve. This nerve transmits hearing and balance information from the inner ear to the
brain. Most acoustic neuromas are diagnosed between the ages of thirty and sixty.
Spinal Cord
Tumours
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