Leukemia
Dedicated
sites / Organizations
- Oncolink Menu
for Leukemia
- Adult
Leukemia (American Cancer Society) an online booklet including details about
diagnosis, staging, treatment etc.
- African Caribbean
Leukemia
Trust (UK) The Trust aims to raise awareness in the Black community, and increase the
number of African Caribbean registered bone marrow donors world wide.
- ALL-L - Adult
Acute Lymphocytic Leukemia Email List (ACOR)
- Angiogenesis
(Leukemia and Lymphoma Society, USA) on-line Fact Sheet
- Cancer and Leukemia Group B
(CALGB) (USA) multidisciplinary cooperative cancer treatment group, NCI / NIH
- Cure 2000 Leukemia Research
Fund, Inc. "Our goal is to apply at least 80% of the funds we raise directly to
leukemia research grants"
- Francoise
Babet Leukemia Foundation Inc. (Australia) a registered charity since 1995 which
provides help and support to patients and families affected by leukemia and other blood
disorders. Also provide accommodation and support to overseas patients who are being
treated in Oz.
- Granny Barb's and
Art's Leukemia Links -Where to get Leukemia Information on the Internet A site by
Barbara Lackritz and Art Flatau. The site is full of information and links for leukemia
and BMT.
- Immunotherapy
(Leukemia and Lymphoma Society, USA) on-line Fact Sheet
- James vs
Leukemia James was diagnosed with Leukemia, age 17 in April 1997. These pages are his
mother's personal account of how leukemia has affected their lives. The site includes a
log of James' treatment, summary of leukemia, "feeding the chemo kids" and other
info
- Josep Carreras International
Leukemia Foundation Spanish and English language support. JCILF was founded in 1988
at the behest of the tenor Josep Carreras, and funds leukemia research and the Redmo
register of marrow donors. Details of the foundation and grant applications.
- Large Granular
Lymphocyte Leukemia Registry (USA) a national registry located at the H. Lee Moffitt
Cancer Center. The registry aims to assist with the diagnosis of LGL leukemia,
collect/analyze information on patients with LGL leukemia, and suggest available clinical
trials for patients.
-
Leukemia Care Society
(UK) A support group established in 1967 which provides support for children and adults
with leukemia and their families. The web site includes detailed information about the
Society and its programs, medical overview and related links.
-
Leukemia
in adults - Audio Clip (NHS Direct, UK)
-
Leukemia Research Fund (UK) A
national cancer charity funding research into leukemia and other types of cancer. The
site includes online patient information booklets, and research abstracts.
- Leukemia and Lymphoma Society
(USA) a national voluntary health agency dedicated to curing leukemia, lymphoma, multiple
myeloma, and Hodgkin's disease. The web site includes details of the 58 chapters of the
society, information booklets, patient services, research etc.
-
Leukemia Support - Chat room
- Lion's
Lyfestyle Leukemia Fund (Malaysia) a voluntary organization founded in 1981 to help
needy patients to pay for treatments leukemia, lympoma, and other related conditions. c/o
University Hospital, Kuala Lumpur
- Living With
Blood Related Cancers - Public Bulletin Board (Leukemia and Lymphoma Society, USA)
- Understanding
Blood Counts (Leukemia and Lymphoma Society, USA) on-line Fact Sheet
-
Oncolink Menu for Leukemia
- EORTC / GIMEMA Leukemia clinical trial
information European collaborative group running clinical trials for leukemia. A
password is required to access protocols etc.
- Gruppo Italiano
Malattie Ematologiche Mailgne dell'Adulto (Italy) national cooperative group running
trials and studies. Italian language site. Ematologiche maligne dell'adulto, con
particolare riguardo alle leucemie acute.
- Laboratory
of Leukocyte Biology (National Cancer Institute, USA) The work of the laboratory
includes determining the genes responsible for the growth and differentiation of
hematopoietic stem cells, and characterizing mechanisms of retroviral infection in
leukocytes.
- Leukemia (Journal)
Contents, abstracts (requires on-line registration), full text (requires subscription).
General
Leukemia Resources
- What
You Need to Know About Leukemia- Patient's booklet (National Cancer Institute, USA)
This site contains information about the disease, diagnosis, staging, and treatment
options.
-
Down's Syndrome And Leukemia (Leukemia Research Fund , UK) on-line leaflet
-
Leukemia
- Fact Sheet Imperial Cancer Research Fund, UK
-
Leukemia
and Related Diseases (Leukemia Research Fund , UK)
- Leukemia
(Ask Alice, Columbia University Health Service, USA)
- Leukemia - Fact
Sheet (Leukemia and Lymphoma Society, USA) on-line booklet
- Leukemia
- overview (MedicineNet)
- Leukemia
Overview (Memorial Sloan-Kettering Cancer Center)
- LISTSERV@SJUVM.STJOHNS.EDU
Hematological Malignancies E-mail Discussion List, including Leukemia, Lymphoma, and
Multiple Myeloma
- LRF Molecular
Haematology Unit (University of Oxford, UK)
- Mast Cell
Leukemia
(Leukemia Research Fund , UK) on-line booklet - information about a rare type of
leukemia
- New Test
Identifies Certain Leukemias (M.D. Anderson Center, USA)
- What
Everyone Should Know about Leukemia - Booklet (Leukemia and Lymphoma Society, USA)
- CancerLit:
Leukemia/Lympoma (National Cancer Institute) On-line abstracts for health
professionals. Sorted by month and year for ALL, AML, CLL, CML, Hairy Cell Leukemia,
Hodgkin's Disease, NHL, Myeloproliferative Disorders, Plasma Cell Neoplasm
- CNS
Complications of Leukemia (MD Anderson Cancer Center)
-
Leukemia
Research Fund - Molecular Pharmacology Laboratory (Newcastle University, UK) research
in the lab aims to improve targeting of cytotoxic drugs in the treatment of
leukemia. The
web pages contain an overview of the research, list of personnel, contact information etc.
- LEUKEMIA -
Email list (EGroups / Neill Publishing Company, USA) an unmoderated online support
group and mailing list for patients, caregivers, and professionals who are interested in
and involved with all types of leukemia.
- Leukemia
Mortality in The USA (1950 - 1980) by Russel Brown (USA)
- Leukemia Research
(Journal)
-
p53: A role in the initiation and progression of Leukemia (The Cancer Journal), 1995, review by
B.A. Guinn, R. A. Padua Volume 8, Number 4 (July - August 1995)
Blood /
Haematology
Childhood Leukemia
-
Patient's information for Childhood Acute Myeloid Leukemia (CancerNet) Information about the
disease, staging, and treatment overviews. It is reviewed each month by a panel of medical
experts.
- Patient's
information for Childhood Acute Lymphocytic Leukemia (CancerNet) Information about
the disease, staging, and treatment overviews. It is reviewed each month by a panel of
medical experts.
- Acute
Leukemia
in Children A booklet for parents. (Leukemia Research Fund, UK)
- Austin's Place
home page of Austin, age 15, who has leukemia
-
Childhood Acute Lymphoblastic Leukemia (UK) a fact sheet produced by the United Kingdom
Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A
Parent's Guide to Children's Cancers".
-
Childhood Acute Myeloid Leukemia (UK) a fact sheet produced by the United Kingdom Children's
Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to
Children's Cancers".
-
Childhood Leukemia (American Cancer Society) an online booklet including details about
diagnosis, staging, treatment etc.
- Childhood Leukemia
Center (Patient Centered Guides .Com) Includes material from "Childhood Leukemia:
A Guide for Families, Friends, and Caregivers" by Nancy Keene. Childhood leukemia
FAQ. Book ordering information.
- Childhood Leukemia Foundation
(USA) A national non-profit organization based in New Jersey. The Web site includes
details of services including camp scholarships and financial assistance.
- Children With
Leukemia Trust
(UK) Charity formed to help relieve the financial burden of bone marrow testing and
transplants in the UK.
- Children's Leukemia
Foundation of Michigan (USA) CLF was founded by parents in 1952 and aims to provide
compassionate personalized support for both children and adults with leukemia and other
blood disorders. The site includes information about services, Q&A, events, newsletter
etc.
-
Daniel's FISH Fund / Philadelphia Positive Leukemia (UK) Daniel, age 2 was diagnosed with
Philadelphia positive leukemia in 1994. This web site includes summaries of the disease,
FISH, research, and photographs of Daniel. The fund supports research at the Royal Free
Hospital, London
- Doris Gowen's
Leukemia Home Page Features 12 year-old Doris' fight with acute lymphocytic leukemia,
her chemotherapy, relapse, BMT, early post-transplant relapse and participation in a
clinical trial using immunotoxin B43-PAP. She died May 22, 1999.
- Emotional
Aspects of Childhood Leukemia - Online Booklet (Leukemia and Lymphoma Society, USA)
- Event:
Battersy Young Strings in Concert - 11th June 2000 (UK) a concert in tribute to of one
of the orchestra members, Jamie Gregory, who sadly died from leukemia last year. Raising
money for the Leukemia Research Fund
-
Foundation for Children with Leukemia (UK) a charity founded in 1988 which provides resources for
leukemia
treatment and research in centres throughout the UK and funds the Paul O'Gorman Centres at
GOS and Bristol. The web site includes details of the charity's work, events etc.
- I'm
Having a Bone Marrow Transplant (Leukemia and Lymphoma Society, USA) a coloring book
designed to help children up to 15 years of age express themselves throughout the
stressful process of having a bone marrow transplant.
- In Memory of Jamie
Gregory - A Parent's Story (UK) Jamie was lost to leukemia in 1999. This site by his
parents includes details of their personal experiences, information sources, summary of
ALL, pictures etc. There is a link to Jamie's own web pages.
- Josh Eaton's Home Page
A 7 year old who has had a bone marrow transplant for Philadelphia chromosome positive
acute lymphoblastic leukemia. Sadly Josh passed away but the web pages remainon-line to
provide information about BMT for others.
-
Leukemia Busters
(UK) This is a registered charity based at Southampton General Hospital. It was founded in
1989 to raise money for research into leukemia and lymphoma at The Simon Flavell
Leukemia Research Unit.
-
Leukemia
in Children - Audio Clip (NHS Direct, UK) 7 minutes
- Leukemia
and Me - a poem by Joan Fleitas RN (in Band-aides and Blackboards) a story-rhyme for
children divided into 3 parts describing blood cells, about the leukemia
"bullies", treatment and other issues. A wonderful inspiring poem.
- National Children's
Leukemia Foundation (USA) The NCLF is a non-profit organization providing services,
support, and referrals for leukemia patients and their families. The site provides details
of their telephone help line, and information on various topics related to childhood
leukemia.
- One Voice
Across America - A
Ride To Fight Childhood Cancer (USA) This site is by Bobby, a 19 year old survivor of
childhood leukemia who is doing a 4,300 mile cross-country bike ride to raise money for
childhood cancer. There are photographs, news articles, and details of how you can help.
-
Paediatric - Acute Lymphoblastic Leukemia (Royal Marsden Hospital, UK) An on-line booklet.
-
Paediatric - Acute Myeloid Leukemia (Royal Marsden Hospital, UK) An on-line booklet.
-
Paediatric - Chronic Myeloid Leukemia (Royal Marsden Hospital, UK) An on-line booklet.
- Paediatric
Leukemia (Singapore) A project by students from Crescent Girls' School in association
with the National University Hospital to educate to public about Paediatric
Leukemia in
Singapore. The site has several pages about various aspects of paediatric
leukemia.
-
Paediatric Relapsed acute Lymphoblastic leukemia (Royal Marsden Hospital, UK) An on-line
booklet.
- Pediatric
Oncology Resource Center: Leukemia (USA) This page contains information and links on
various aspects of childhood leukemia. It is part of the Pediatric Oncology Resource
Center, a site produced by parents of children with cancer, hosted by Association of
Cancer Online Resources.
- Stephanie's
Fight Against Leukemia (Ontario, Canada) This is the home page of Stephanie, who was
diagnosed with Acute Lymphoblastic Leukemia at age 4. The site by
Stephanie's Dad
includes a daily diary, pictures, and personal accounts of chemotherapy.
- Steven's Page
Steven, age 5 was diagnosed with acute lymphocytic leukemia in January 1999. This page has
been set up by his Grandfather, it includes a message board with Steven's treatment
updates and leukemia related links.
- Stories and
Faces: Leukemia (Pediatric Oncology Resource Center) List of home pages of children
affected by leukemia
- Thomas'
Home Page home page of a young child with leukemia
- Yossi
Chaim's Home Page Yossi was diagnosed with leukemia (ALL) in 1997. This site has been
set up by his parents and includes detailed updates of Yossi's experience of chemotherapy
and bone marrow transplant. Doing well at Day+730! Great graphics.
-
Physician's PDQ statement for Childhood Acute Lymphocytic Leukemia (CancerNet) A referenced
overview of the disease, cellular classification, staging, and current treatment
overviews. It is reviewed each month by experts at the NCI.
- Physician's
PDQ statement for Childhood Acute Myeloid Leukemia (CancerNet) A referenced overview
of the disease, cellular classification, staging, and current treatment overviews. It is
reviewed each month by experts at the NCI.
- Case
study: 14 year old girl with ALL develops fever and chest pain during induction chemo
(Oncolink: Paediatric Case of the Month, June 1995) case history, radiology and pathology
images, discussion etc.
- Case
study: 6 week old infant with Leukemia and CNS Relapse (Oncolink: Paediatric Case of
the Month, May 1994) case history, radiology and pathology images, discussion etc.
- Case
study: The Role of Leukapheresis in the Management of Hyperleukocytosis (2 cases)
(Oncolink: Paediatric Case of the Month, July 1994) case history, radiology and pathology
images, discussion etc.
- Case:
5 yr old boy with leukemia presents during "maintenance" with
fevers/lymphadenopathy (Oncolink: Paediatric Case of the Month, Oct. 1994) case
history, radiology and pathology images, discussion etc.
-
OncoLink Menu for Pediatric Leukemia (USA)
- Childhood ALL
Collaborative Group (UK) the group are involved in research into childhood acute
lymphoblastic leukemia including the UKALL clinical trials run by the MRC/ICRF/BHF
Clinical Trial Service Unit in Oxford.
- Childhood
Leukemia (USA) Part of a SEER report on cancer incidence and survival among children
and adolescents; 1975-1995. PDF format.
- Negative
Mood in Childhood Leukemia Survivors Abstract: Comparison of Psychologic Outcome in
Adult Survivors of Childhood Acute Lymphoblastic Leukemia..A CCG/NIH study. J Clin Oncol
15:547-556, 1997.
Acute
Lymphocytic Leukemia
Acute lymphoblastic
leukemia (also known as acute
lymphocytic leukemia or ALL) is a disease where too many immature lymphocytes (a type of
white blood cell) are found in the blood and bone marrow. Symptoms can include persistent
fever, weakness or tiredness, achiness in the bones or joints, or swollen lymph nodes.
Adult ALL and its treatment is usually different to childhood ALL. Almost a third of adult
patients have a specific chromosome translocation; "Philadelphia Positive" ALL.
- Patient's
information for Adult Acute Lymphocytic Leukemia (CancerNet) Information about the
disease, staging, and treatment overviews. It is reviewed each month by a panel of medical
experts.
- Acute
Lymphoblastic Leukemia (Leukemia Research Fund, UK)
- Acute
Lymphocytic Leukemia - Booklet (Leukemia and Lymphoma Society, USA) on-line booklet
- General information
for acute lymphocytic leukemia (St Jude's Children's Research Hospital)
-
T-Cell Acute Lymphoblastic Leukemia (Leukemia Research Fund , UK)
on-line fact sheet
-
Understanding Acute Lymphoblastic Leukemia (BACUP, UK) An on-line booklet
- Physician's
PDQ statement for Adult Acute Lymphocytic Leukemia (CancerNet) A referenced overview
of the disease, cellular classification, staging, and current treatment overviews. It is
reviewed each month by experts at the NCI.
- Case study: 39 year
old woman with acute lymphoblastic leukemia with t(9;22)(q43;q11.2) (Department of
Pathology, University of Pittsburgh)
- Chromosomal
Abnormalities in ALL (University of Wisconsin, Waisman Center Cytogenetics Lab)
- Physician's statement for
Adult Acute Lymphoblastic Leukemia (START, European School of Oncology) Referenced
statement including a sections on prevention of Emesis induced by chemotherapy, induced
by radiotherapy, and emesis prevention in children.
Acute Myeloid
Leukemia
Acute myeloid leukemia (AML) is a disease in which
too many immature granulocytes (a type of white blood cell) are found in the blood and
bone marrow. There are a number of subtypes of AML including acute myeloblastic leukemia,
acute promyelocytic leukemia, acute monocytic leukemia, acute myelomonocytic leukemia,
erythroleukemia, and acute megakaryoblastic leukemia.
- Patient's
information for Adult Acute Myeloid Leukemia (CancerNet) Information about the
disease, staging, and treatment overviews. It is reviewed each month by a panel of medical
experts.
- Acute
Myelogenous Leukemia - On-line Booklet (Leukemia and Lymphoma Society, USA) on-line
booklet
- Acute Myeloid
Leukemia (Leukemia Research Fund, UK)
- AML - Acute
Myeloid Leukemia Support Group (ACOR) Email list
- General information
for acute myeloid leukemia (St Jude's Children's Research Hospital)
- Understanding
Acute Myeloblastic Leukemia (BACUP, UK) An on-line booklet
- Physician's
PDQ statement for Adult Acute Myeloid Leukemia (CancerNet) A referenced overview of
the disease, cellular classification, staging, and current treatment overviews. It is
reviewed each month by experts at the NCI.
- AML Collaborative
Group (UK) The group is involved in research into acute myeloid
leukemia including
clinical trials run by the MRC/ICRF/BHF Clinical Trial Service Unit in Oxford.
- Case study: A 66
year old man with acute myelogenous leukemia (Department of Pathology, University of
Pittsburgh)
- Case study: Acute
myelogenous leukemia (FAB-M2)+ chronic lymphocytic leukemia in a 68 yr F (Department
of Pathology, University of Pittsburgh)
- Chromosomal
Abnormalities in AML (University of Wisconsin, Waisman Center Cytogenetics Lab)
Chronic
Lymphocytic Leukemia
- Patient's
information for Chronic Lymphocytic Leukemia (CancerNet) Information about the
disease, staging, and treatment overviews. It is reviewed each month by a panel of medical
experts.
- Chronic Lymphocytic
Leukemia - Patient's information (Leukemia Research Fund, UK)
- Chronic
Lymphocytic Leukemia (Granny Barb's Leukemia Links)
- Chronic
Lymphocytic Leukemia - Booklet (Leukemia and Lymphoma Society, USA) on-line booklet
- CLL - Chronic
Lymphocytic Leukemia Support Group Email List
- Granny Barb's
Story - Chronic Lymphocytic Leukemia (Leukemia Links)
- Tony
Bradford's Chronic Lymphocytic Leukemia Page
- Understanding
Chronic Lymphocytic Leukemia (BACUP, UK) An on-line booklet
- Physician's
PDQ statement for Chronic Lymphocytic Leukemia (CancerNet) A referenced overview of
the disease, cellular classification, staging, and current treatment overviews. It is
reviewed each month by experts at the NCI.
- Case study: A
74-year-old male with chronic lymphocytic leukemia and metastatic melanoma (Department
of Pathology, University of Pittsburgh)
- Case study: A 76
year old white male with chronic lymphocytic leukemia (Department of Pathology,
University of Pittsburgh)
- CLL Trialists'
Collaborative Group (UK) the group are involved in research into chronic lymphocytic
leukemia including clinical trials run by the MRC/ICRF/BHF Clinical Trial Service Unit in
Oxford.
Chronic
Myeloid Leukemia
- Patient's
information for Chronic Myelogenous Leukemia (CancerNet) Information about the
disease, staging, and treatment overviews. It is reviewed each month by a panel of medical
experts.
- Chronic
Myelogenous Leukemia - Booklet (Leukemia and Lymphoma Society, USA) on-line booklet
- Chronic Myeloid
Leukemia - Patient's information (Leukemia Research Fund, UK)
- CML - Chronic
Myelogenous Leukemia Support Email List
- CML
International Support Group - Email list (EGroups / Neill Publishing Company, USA) an
unmoderated information list and online support group for patients, caregivers, and
professionals interested in and involved with Chronic Myelogenous Leukemia.
- Trish Marine's
Leukemia Home Page This site contains the story of Trish Marine who was diagnosed with
chronic myelogenous leukemia in 1996.
- Understanding
Chronic Myeloid Leukemia (BACUP, UK) An on-line booklet
- Physician's
PDQ statement for Chronic Myelogenous Leukemia (CancerNet) A referenced overview of
the disease, cellular classification, staging, and current treatment overviews. It is
reviewed each month by experts at the NCI.
- Chromosomal
Abnormalities in CML and CLL (University of Wisconsin, Waisman Center Cytogenetics
Lab)
- CML Trialists'
Collaborative Group (UK) the group are involved in research into chronic myeloid
leukemia including clinical trials run by the MRC/ICRF/BHF Clinical Trial Service Unit in
Oxford.
- Physician's
info Low-dose IFN-alpha as Effective as High-dose for Chronic Myeloid Leukemia
(Medical Science Bulletin, Pharminfo)
Hairy Cell
Leukemia
BMT for
Leukemia
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