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Brain Cancer

 

FREE Cancer Information Tape....

Cancer information. Cancer may be preventable. Latest medical reasearch shows antioxidants help....CLICK HERE to obtain a FREE tape by Glen A Halvorson M.D.
100 Pages Found, 119 Links Found, 21368 Score, http://www.greenwoodhealth.com/stan/tape

Beyond the Road's End...

Brain tumor electronic book, true story of a couple's journey through glioblastoma diagnosis, treatments, support, death and dying....
42 pages found, 2 links found, 321 score http://www.beyondbook.com

Brain Tumor Society: Resources for patients, families, and professionals...

The Brain Tumor Society provides resources for patients, survivors, family, friends and professionals. Site Map  About TBTS  Basic Information About Brain Tumors  Patient Family Resources  Newsletter...
135 pages found, 137 links found, 125 score http://www.tbts.org

NBTF - Giving Help Giving Hope...

Copyright 2000 National Brain Tumor Foundation | Disclaimer ...
79 pages found, 54 links found, 115 score http://www.braintumor.org

Organisations

• American Brain Tumour Association (USA) A non-profit organisation founded in 1973 dedicated to the elimination of brain tumors through research and patient education services.
• Brain Tumor Foundation of Canada
• Brain Tumor Society (USA) Resources for both patients, relatives, and health professionals
• Give Hope (UK) a national brain tumour organisation aiming to provide support and promote awareness and research. The site includes a newsletter, list of events, list of UK addresses, links, and other information.
• National Brain Tumor Foundation (USA) a non-profit organisation dedicated to raising funds for research and to providing support to patients and their families. The web site includes information about tumor types, treatments, clinical trials, FAQ, news, physician's resources etc.
• Tillison Research Center (Indiana, USA) A non-profit organisation funded by donations. The center provides customised information on brain tumors and research, support for transportation, and other services. Extensive links to other brain tumor resources.
  

Childhood Brain Tumours

• Patient's info. for Childhood Supratentorial Primitive Neuroectodermal and Pineal Tumours (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• Patient's information for Childhood Brain Stem Glioma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• Patient's information for Childhood Brain Tumours (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• Patient's information for Childhood Cerebellar Astrocytoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• Patient's information for Childhood Cerebral Astrocytoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• Patient's information for Childhood Medulloblastoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• Patient's information for Childhood Visual Pathway Glioma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• A Starting Point - to Connect with Resources Related to Pediatric Neuro-oncology (University of Miami Medical School, USA) This site provides links to resources about children's brain tumours listed by category (tumor types, treatments, organisations, listservers, research, etc), medical terms etc.
• Angel Wings - A Memorial to Michael A site about Michael who was sadly lost after developing a brain tumour. The site includes Michael's story, poems by mother; Martha, and links.
• Ashley's Story: Cancer, Courage, Hope ...Victory ! Most of Ashley's brain tumour (medulloblastoma) was removed by surgery in early 1997, these pages by her father include information and pictures with a detailed diary of her treatment with chemotherapy and radiotherapy.
• Brain Tumor Research - Pediatric Oncology Branch - National Cancer Institute (USA) a brief summary of children's brain tumour research at NCI.
• Brain Tumor Survivor Stories: James M (UK) James, from Manchester, was diagnosed with medulloblastoma in November 1997 at 5 yrs of age. This is his inspiring story hosted on the "Clinical Trials and Noteworthy Treatments for Brain Tumors" web site.
• Brianna's Home Page - diagnosed with a PNET Brain Tumor in 1996, age 6 diary updates, information, pictures and links
• CHILD-NEURO-PARENT E-mail discussion list (University of Wisconsin, USA) a list for parents of Children with neurological problems to share their concerns, questions, sources of information, experiences, and helpful tips regarding issues in Child Neurology (including brain tumors).
• Childhood Brain Tumours (American Brain Tumor Association)
• Childhood Brain Tumours (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
• Childhood Central Nervous System Tumours (Health Canada) in the booklet "This Battle Which I Must Fight"
• Children's Brain Tumor Foundation (USA) The CBTF is a non-profit organization founded by families, friends and physicians of children with brain tumors; the foundation raises funds for research. This site includes details of services and events, and articles about brain tumours
• General information for astrocytoma (St Jude's Children's Research Hospital)
• General information for empendymoma (St Jude's Children's Research Hospital)
• General information for Germ Cell Tumours of the brain (St Jude's Children's Research Hospital)
• General information for Glioma (St Jude's Children's Research Hospital)
• General information for medulloblastoma (St Jude's Children's Research Hospital)
• Hannah's Hugs (Illinois, USA) a program to help parents of children with brain tumors, including practical support for parents during hospital stays. The site includes information about the program, services, volunteers, donations and links.
• Johns Hopkins Pediatric Neuro-oncology Team
• Katie Trust, The (UK) The Katie Trust is a registered charity, formed in 1999, in memory of Katie Neal who had medulloblastoma. It funds research into childhood brain tumours and provides emotional support to children and their families, in the North of England.
• Kelly's Page - diagnosed with medulloblastoma in 1997, age 12 yrs Pictures and treatment updates.
• Kieran's Web Page - diagnosed with astrocytoma in August 1999, age 3. (Glasgow, UK) This page has details of Kieran and his diagnosis and treatment with surgery and chemotherapy for a low grade astrocytoma. There is an update of Kieran's treatment, guest book, summary of medical information and links.
• Kyle's Story - Kyle was diagnosed with medulloblastoma in 1995 his story !
• Medulloblastoma (BACUP, UK) Factsheet
• Medulloblastoma / PNET Email Discussion List an Email discussion / support list for medulloblastoma and PNET's set up by parents in the UK.
• Neuroscience for Kids a site for students and teachers who would like to learn more about the nervous system. Includes activities and experiments to learn about the brain and spinal cord. Maintained by Eric Chudler, suported by The National Center of Research Resources.
• Paediatric Brainstem Tumours (Royal Marsden Hospital, UK) An on-line booklet.
• Pediatric (Developmental) Neurosurgery Unit (Massachusetts General Hospital / Harvard Medical school, USA)
• Pediatric Brain Tumor Patient Resource Handbook (Brain Tumour Foundation of Canada - via OncoLink)
• Pediatric Oncology Resource Center: Brain Tumors (USA) This page contains information and links on various aspects of childhood brain tumours. It is part of the Pediatric Oncology Resource Center, a site produced by parents of children with cancer, hosted by Association of Cancer Online Resources.
• Ride 4 Kids - Pediatric Brain Tumor Foundation (USA) Ride for Kids is a not-for-profit organisation which provides funds for research into childhood brain tumours by the Pediatric Brain Tumor Foundation. This site includes a Mission Statement, Event schedule, and a Newsletter.
• Rory David Deutsch Foundation (USA) Founded in memory of a 7 year old who died from a brain stem glioma the Rory David Deutsch Foundation is dedicated to raising money for medical research on brain tumors in children.
• Stories and Faces: Brain Cancer (Pediatric Oncology Resource Center) List of home pages of children affected by brain tumors.
• The Talking Lady Presents: Having A Brain Tumor Commercial. Information about a child friendly book for families where either parent or child has been diagnosed with a brain tumor.
• Tillison Research Center - Paediatric Section (Indiana, USA) A brain tumor information and support center. With programs for the patient as well as there families.
  

Adult / General Resources

• Patient's information for Adult Brain Tumours (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• What You Need to Know About Brain Tumours- Patient's booklet (National Cancer Institute, USA) This site contains information about the disease, diagnosis, staging, and treatment options.
• A Primer of Brain Tumors (American Brain Tumor Association) A Patient's Reference Manual
• Adult Brain and Spinal Cord Cancer Information (American Cancer Society) an online booklet including details about diagnosis, staging, treatment etc.
• Al Musella's List of Clinical Trials and Noteworthy Treatments for Brain Tumors This site includes a searchable database of over 200 trials and treatments for brain tumors including new and experimental treatments. There is also a Brain Tumor Forum, a Journal Club, web links, newsletter, survivors stories and memorials.
• Astrocytoma (BACUP, UK) Factsheet
• Beyond the Road's End A book by the wife of a cancer patient: telling the story of her husband's 5 month battle with a brain tumour, including treatments, support, links, death and dying, and other issues. The book can be viewed online or downloaded free (PDF)
• Biopsy versus resection for malignant glioma (Cochrane Collaboration) Abstract of a systematic review.
• Brain Tumor Therapy (Massachusetts General Hospital, USA)
• Brain Tumours - overview (MedicineNet)
• Dictionary for Brain Tumor Patients (American Brain Tumor Association)
• Emma Koenkev's home page A brain tumor patient
• Ependymoma (BACUP, UK) Factsheet
• Haemangioblastoma (BACUP, UK) Factsheet
• Hydrocephalus Association
• Massachusetts General Hospital (Neuro-Oncology Resources)
• Meningioma (BACUP, UK) Factsheet
• Mixed Glioma (BACUP, UK) Factsheet
• Oligodendroglioma (BACUP, UK) Factsheet
• Understanding Brain Tumours (BACUP, UK) An on-line booklet
• Whole Brain Atlas (Harvard University)
  

Centres / Units

• Division of Neuro-Oncology - University of Miami Medical School (University of Miami / Jackson Memorial Hospital, USA) includes contact info, summary of programs and brain tumors.
• Georgetown University Medical Center - Department of Neurosurgery (USA)
• Johns Hopkins Brain Tumor Radiosurgery (Johns Hopkins University, USA)
• Massachusetts General Hospital - Neurosurgical Service (Harvard Medical School, USA)
• Midwest Children's Brain Tumor Center (Lutheran General Children's Hospital, Chicago, USA)
• New York University - Department of Neurosurgery (USA) resources for patients, families, and health care professionals. Includes a patient oriented section on What is neurosurgery ?
• W.M. Keck Foundation (USA) Center for Integrative Neuroscience UCSF
  

Acoustic Neuroma

Acoustic neuroma (also sometimes called a neurinoma or schwannoma) is a benign (non-cancerous) tissue growth that arises on the eighth cranial nerve. This nerve transmits hearing and balance information from the inner ear to the brain. Most acoustic neuromas are diagnosed between the ages of thirty and sixty.

• Acoustic neuroma (BACUP, UK) Factsheet
• Acoustic Neuroma Association
• Brian's Acoustic Neuroma UK Pages (UK) This site compiled by a patient with acoustic neuroma includes information about the disease, personal perspectives, resources etc.
• British Acoustic Neuroma Association (UK)
  

Spinal Cord Tumours

• Case study: 20 Month Old boy with Paravertebral Malignant Teratoma (Department of Pathology, University of Pittsburgh)- clinical details, radiology, biopsy slides and autopsy diagnoses.
• Welcome to Terri's Place (Australia) Terri was just 2yrs old she was diagnosed with a rare spinal cord tumour in August 1993. These pages tell of her brave fight against cancer.