Cancer information.
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Adult
Leukemia (American Cancer Society) an online booklet including details about
diagnosis, staging, treatment etc.
African Caribbean Leukaemia
Trust (UK) The Trust aims to raise awareness in the Black community, and increase the
number of African Caribbean registered bone marrow donors world wide.
Francoise
Babet Leukaemia Foundation Inc. (Australia) a registered charity since 1995 which
provides help and support to patients and families affected by leukaemia and other blood
disorders. Also provide accommodation and support to overseas patients who are being
treated in Oz.
Immunotherapy
(Leukemia and Lymphoma Society, USA) on-line Fact Sheet
James vs
Leukemia James was diagnosed with Leukemia, age 17 in April 1997. These pages are his
mother's personal account of how leukemia has affected their lives. The site includes a
log of James' treatment, summary of leukemia, "feeding the chemo kids" and other
info
Josep Carreras International
Leukaemia Foundation Spanish and English language support. JCILF was founded in 1988
at the behest of the tenor Josep Carreras, and funds leukemia research and the Redmo
register of marrow donors. Details of the foundation and grant applications.
Large Granular
Lymphocyte Leukemia Registry (USA) a national registry located at the H. Lee Moffitt
Cancer Center. The registry aims to assist with the diagnosis of LGL leukemia,
collect/analyze information on patients with LGL leukemia, and suggest available clinical
trials for patients.
Leukaemia Care Society
(UK) A support group extablished in 1967 which provides support for children and adults
with lekaemia and their families. The web site includes detailed information about the
Society and its programmes, medical overview and related links.
Leukaemia Research Fund (UK) A
national cancer charity funding research into leukaemia and other types of cancer. The
site includes online patient information booklets, and research abstracts.
Leukemia and Lymphoma Society
(USA) a national voluntary health agency dedicated to curing leukemia, lymphoma, multiple
myeloma, and Hodgkin's disease. The web site includes details of the 58 chapters of the
society, information booklets, patient services, research etc.
Lion's
Lyfestyle Leukemia Fund (Malaysia) a volunatry organisation founded in 1981 to help
needy patients to pay for treatments leukemia, lympoma, and other related conditions. c/o
University Hospital, Kuala Lumpur
Laboratory
of Leukocyte Biology (National Cancer Institute, USA) The work of the laboratory
includes determining the genes responsible for the growth and differentiation of
hematopoietic stem cells, and characterizing mechanisms of retroviral infection in
leukocytes.
Leukemia (Journal)
Contents, abstracts (requires on-line registration), full text (requires subscription).
CancerLit:
Leukemia/Lympoma (National Cancer Institute) On-line abstracts for health
professionals. Sorted by month and year for ALL, AML, CLL, CML, Hairy Cell Leukemia,
Hodgkin's Disease, NHL, Myeloproliferative Disorders, Plasma Cell Neoplasm
Leukaemia
Research Fund - Molecular Pharmacology Laboratory (Newcastle University, UK) research
in the lab aims to improve targeting of cytotoxic drugs in the treatment of leukaemia. The
web pages contain an overview of the research, list of personnel, contact information etc.
LEUKEMIA -
Email list (EGroups / Neill Publishing Company, USA) an unmoderated online support
group and mailing list for patients, caregivers, and professionals who are interested in
and involved with all types of leukemia.
Austin's Place
home page of Austin, age 15, who has leukemia
Childhood
Acute Lymphoblastic Leukaemia (UK) a factsheet produced by the United Kingdom
Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A
Parent's Guide to Children's Cancers".
Childhood
Acute Myeloid Leukaemia (UK) a factsheet produced by the United Kingdom Children's
Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to
Children's Cancers".
Childhood
Leukaemia (American Cancer Society) an online booklet including details about
diagnosis, staging, treatment etc.
Childhood Leukemia
Center (Patient Centered Guides .Com) Includes material from "Childhood Leukemia:
A Guide for Families, Friends, and Caregivers" by Nancy Keene. Childhood leukemia
FAQ. Book ordering information.
Childhood Leukemia Foundation
(USA) A national non-profit organization based in New Jersey. The Web site includes
details of services including camp scolarships and financial assistance.
Children With Leukaemia Trust
(UK) Charity formed to help relieve the financial burden of bone marrow testing and
transplants in the UK.
Children's Leukemia
Foundation of Michigan (USA) CLF was founded by parents in 1952 and aims to provide
compassionate personalised support for both children and adults with leukemia and other
blood disorders. The site includes information about services, Q&A, events, newsletter
etc.
Daniel's FISH
Fund / Philadelphia Positive Leukaemia (UK) Daniel, age 2 was diagnosed with
Philadelphia positive leukaemia in 1994. This web site includes summaries of the disease,
FISH, research, and photographs of Daniel. The fund supports research at the Royal Free
Hospital, London
Doris Gowen's
Leukemia Home Page Features 12 year-old Doris' fight with acute lymphocytic leukemia,
her chemotherapy, relapse, BMT, early post-transplant relapse and participation in a
clinical trial using immunotoxin B43-PAP. She died May 22, 1999.
Foundation for Children with
Leukaemia (UK) a charity founded in 1988 which provides resources for leukaemia
treatment and research in centres throughout the UK and funds the Paul O'Gorman Centres at
GOS and Bristol. The web site includes details of the charity's work, events etc.
I'm
Having a Bone Marrow Transplant (Leukemia and Lymphoma Society, USA) a coloring book
designed to help children up to 15 years of age express themselves throughout the
stressful process of having a bone marrow transplant.
In Memory of Jamie
Gregory - A Parent's Story (UK) Jamie was lost to leukaemia in 1999. This site by his
parents includes details of their personal experiences, information sources, summary of
ALL, pictures etc. There is a link to Jamie's own web pages.
Josh Eaton's Home Page
A 7 year old who has had a bone marrow transplant for Philadelphia chromosome positive
acute lymphoblastic leukemia. Sadly Josh passed away but the web pages remainon-line to
provide information about BMT for others.
Leukaemia Busters
(UK) This is a registered charity based at Southampton General Hospital. It was founded in
1989 to raise money for research into leukaemia and lymphoma at the The Simon Flavell
Leukaemia Research Unit.
Leukemia
and Me - a poem by Joan Fleitas RN (in Band-aides and Blackboards) a story-rhyme for
children divided into 3 parts describing blood cells, about the leukemia
"bullies", treatment and other issues. A wonderful inspiring poem.
National Children's
Leukemia Foundation (USA) The NCLF is a non-profit organization providing services,
support, and referrals for leukemia patients and their families.The site provides details
of their telephone help line, and information on various topics related to childhood
leukemia.
One Voice Accross America - A
Ride To Fight Childhood Cancer (USA) This site is by Bobby, a 19 year old survivor of
childhood leukemia who is doing a 4,300 mile cross-country bike ride to raise money for
childhood cancer. There are photographs, news articles, and details of how you can help.
Paediatric
Leukaemia (Singapore) A project by students from Crescent Girls' School in association
with the National University Hospital to educate to public about Paediatric Leukaemia in
Singapore. The site has several pages about various aspects of paediatric leukaemia.
Pediatric
Oncology Resource Center: Leukemia (USA) This page contains information and links on
various aspects of childhood leukemia. It is part of the Pediatric Oncology Resource
Center, a site produced by parents of children with cancer, hosted by Association of
Cancer Online Resources.
Stephanie's
Fight Against Leukemia (Ontario, Canada) This is the home page of Stephanie, who was
diagnosed with Acute Lymphoblastic Leukemia at age 4. The site by Stephanies's Dad
includes a daily diary, pictures, and personal accounts of chemotherapy.
Steven's Page
Steven, age 5 was diagnosed with acute lymphocytic leukemia in January 1999. This page has
been set up by his Grandfather, it includes a message board with Steven's treatment
updates and leukemia related links.
Stories and
Faces: Leukemia (Pediatric Oncology Resource Center) List of home pages of children
affected by leukemia
Yossi
Chaim's Home Page Yossi was diagnosed with leukaemia (ALL) in 1997. This site has been
set up by his parents and includes detailed updates of Yossi's experience of chemotherapy
and bone marrow transplant. Doing well at Day+730 ! Great graphics.
Childhood ALL
Collaborative Group (UK) the group are involved in research into childhood acute
lymphoblastic leukaemia including the UKALL clinical trials run by the MRC/ICRF/BHF
Clinical Trial Service Unit in Oxford.
Childhood
Leukemia (USA) Part of a SEER report on cancer incidence and survival among children
and adolescents; 1975-1995. PDF format.
Negative
Mood in Childhood Leukemia Survivors Abstract: Comparison of Psychologic Outcome in
Adult Survivors of Childhood Acute Lymphoblastic Leukemia..A CCG/NIH study. J Clin Oncol
15:547-556, 1997.
Acute lymphoblastic leukaemia (also known as acute
lymphocytic leukaemia or ALL) is a disease where too many immature lymphocytes (a type of
white blood cell) are found in the blood and bone marrow. Symptoms can include persistent
fever, weakness or tiredness, achiness in the bones or joints, or swollen lymph nodes.
Adult ALL and its treatment is usually different to childhood ALL. Almost a third of adult
patients have a specific chromosome translocation; "Philadelphia Positive" ALL.
Physician's statement for
Adult Acute Lymphoblastic Leukaemia (START, European School of Oncology) Referenced
statement including a sections on prevention iof Emesis induced by chemotherapy, induced
by radiotherapy, and emesis prevention in children.
Acute myeloid leukemia (AML) is a disease in which
too many immature granulocytes (a type of white blood cell) are found in the blood and
bone marrow. There are a number of subtypes of AML including acute myeloblastic leukemia,
acute promyelocytic leukemia, acute monocytic leukemia, acute myelomonocytic leukemia,
erythroleukemia, and acute megakaryoblastic leukemia.
AML Collaborative
Group (UK) The group is involved in research into acute myeloid leukaemia including
clinical trials run by the MRC/ICRF/BHF Clinical Trial Service Unit in Oxford.
CLL Trialists'
Collaborative Group (UK) the group are involved in research into chronic lymphocytic
leukaemia including clinical trials run by the MRC/ICRF/BHF Clinical Trial Service Unit in
Oxford.
CML
International Support Group - Email list (EGroups / Neill Publishing Company, USA) an
unmoderated information list and online support group for patients, caregivers, and
professionals interested in and involved with Chronic Myelogenous Leukemia.
Trish Marine's
Leukemia Home Page This site contains the story of Trish Marine who was diagnosed with
chronic myelogenous leukemia in 1996.
CML Trialists'
Collaborative Group (UK) the group are involved in research into chronic myeloid
leukaemia including clinical trials run by the MRC/ICRF/BHF Clinical Trial Service Unit in
Oxford.
Physician's
PDQ statement for Hairy Cell Leukaemia (CancerNet) A referenced overview of the
disease, cellular classification, staging, and current treatment overviews. It is reviewed
each month by experts at the NCI.
Anthony Nolan Bone Marrow
Trust (UK) Founded in 1974, the Trust is a leading centre for research and also runs
the UK register of potential donors. The web site includes details about the Trust,
information about BMT, research, fund-raising, how to become a donor, etc.
Laurel
Simmons' Home Page (BMT / Leukemia info) Laurel had a bone marrow transplant in 1987
for CML. This is Laurel's home page including the BMT-Talk discussion list page and links
to cancer resources.
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