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Multiple Myeloma

Multiple myeloma (also known as myelomatosis or myeloma) is a cancer in which there is abnormal growth in the number of plasma cells in the bone-marrow and blood. This can suppress the normal production of blood cells, including those associated with the body's immune system. The plasma cells may collect in the bone to make small tumours known as plasmacytomas. Multiple myeloma is most common in people aged over 60, and is rare before the age of 40.

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Myeloma Organisations

• Cancer and Leukemia Group B (CALGB) (USA) multidisciplinary cooperative cancer treatment group, NCI / NIH
• International Meyeloma Foundation - UK (UK) The IMF established an office in Edinburgh in April 1997. IMF-UK is a registered charity. This site provides details about the organisation, support groups, meetings, newsletters and other related information.
• International Myeloma Foundation This site contains details of the IMF, telephone hotline, and information packs. Online resources include a newsletter, email discussion group, and patient hand book. Also there is information for researchers: grant applications etc.
• Josep Carreras International Leukaemia Foundation Spanish and English language support. JCILF was founded in 1988 at the behest of the tenor Josep Carreras, and funds leukemia research and the Redmo register of marrow donors. Details of the foundation and grant applications.
• Leukaemia Research Fund (UK) A national cancer charity funding research into leukaemia and other types of cancer. The site includes online patient information booklets, and research abstracts.
• Leukemia and Lymphoma Society (USA) a national voluntary health agency dedicated to curing leukemia, lymphoma, multiple myeloma, and Hodgkin's disease. The web site includes details of the 58 chapters of the society, information booklets, patient services, research etc.
• Midwest Myeloma Exchange and Email List A myeloma organization located in and serving the major medical centers in the midwestern United States, linking patients, caregivers, and medical professionals throughout the world through a free myeloma email discussion group.
• Multiple Myeloma Research Foundation (USA) MMRF was founded in 1996 by Kathy Giusti who was diagnosed with multiple myleoma at age 37. The Foundation raises money for myeloma research. The site includes information about myeloma, events, research grants etc.
• Myeloma Trialists' Collaborative Group (UK) the group are involved in research into multiple myeloma including clinical trials run by the MRC/ICRF/BHF Clinical Trial Service Unit in Oxford.
• National Children's Leukemia Foundation (USA) The NCLF is a non-profit organization providing services, support, and referrals for leukemia patients and their families.The site provides details of their telephone help line, and information on various topics related to childhood leukemia.
• South African Multiple Myeloma Foundation Search for a cure - new ideas on multiple myeloma.
• Medline Search: Multiple Myeloma (PubMed)   Limit search to: [Last Year]  Limit search to: [Last 2 Years]   Limit search to: [Reviews]

Information for Patients and the Public

• What You Need to Know About Multiple Myeloma- Patient's booklet (National Cancer Institute, USA) This site contains information about the disease, diagnosis, staging, and treatment options.
• AMYLOID - Amyloidosis Discussion list (ACOR) An unmoderated Email list for patients, relatives, fiends researchers, health professionals to discuss amyloidosis. This includes amyloidosis associated with myeloma.
• Cleaveland Clinic Foundation Myeloma Program
• Multiple Myeloma (Leukemia and Lymphoma Society, USA) on-line booklet
• Multiple Myeloma (American Cancer Society) an online booklet including details about diagnosis, staging, treatment etc.
• Multiple Myeloma (Leukemia Research Fund , UK) on-line booklet
• Multiple Myeloma (Cleveland Clinic, USA) education and research resources including a Myelom Questions and Answers section and a Myeloma Glossary
• Multiple Myeloma - Fact Sheet Imperial Cancer Research Fund, UK
• Multiple Myeloma Experience Exchange by Eric C. Garland. Including useful links to related sites
• Multiple Myeloma Patient Handbook (International Myeloma Foundation ) Excerpts from the IMF information pack.
• Multiple Myeloma Survivor's Stories by June Brazil
• MYELOMA - International Myeloma Foundation Mailing List Email discussion list
• Myeloma - overview (MedicineNet)
• Myeloma Today Quarterly Online Publication by the International Myeloma Foundation
• Oncolink Menu for Myeloma
• Patient's information for Plasma Cell Neoplasm (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• Plasma Cell World Hiroshima University, Japan
• Understanding Myeloma (BACUP, UK) An on-line booklet

Information for Health Professionals / Researchers

• AMYLOID - Amyloidosis Discussion list (ACOR) An unmoderated Email list for patients, relatives, fiends researchers, health professionals to discuss amyloidosis. This includes amyloidosis associated with myeloma.
• BMT for Myeloma - Newsletter (Oncolink)
• Case study: 68 year-old female with multiple myeloma of the IgD isotype (Department of Pathology, University of Pittsburgh)
• Cleaveland Clinic Foundation Myeloma Program
• Multiple Myeloma (Wheeless' Textbook of Orthopaedics)
• Multiple Myeloma Research Web Server (Cornell University Medical Center) a site oriented to physicians / researchers in myeloma
• MYELOMA - International Myeloma Foundation Mailing List Email discussion list
• Myeloma Today Quarterly Online Publication by the International Myeloma Foundation
• MYELOMA-DR - Myeloma Professional Mailing List Email discussion list
• Oncolink Menu for Myeloma
• Physician's information on Plasma Cells Neoplasms (START, European School of Oncology) Referenced statement including sections on epidemiology, pathology, diagnosis, staging, treatment and follow-up produced by an editorial board of top European oncologists. [Go to Chapters]
• Physician's PDQ statement for Plasma Cell Neoplasm (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
• Plasma Cell Myeloma (University of Oxford, UK)
• Plasma Cell World Hiroshima University, Japan
• Radiological images of Multiple Myeloma and Plasmacytoma (Radiology Museum, Southbank University, UK)